Tag: Immunocompromised

Suckerpunch II: The Last Guardrail

As Christmas approaches, I am in a period of reflection and gratitude, but you might not know it from looking. This is the first year since 2006 that I haven’t put up a Christmas tree, and the only year I haven’t really bought Christmas gifts or sent a single holiday card. I’m not making Christmas cookies or any special holiday food. On the Autoimmune Protocol I can’t have the vast majority of it anyway, and modifying all the recipes would take more creativity and talent than I have at the moment. V didn’t put Christmas lights outside this year, or plug in our obnoxious inflatable snowman who rose with a wave for the last 15 years to greet anyone who approached our home for the holidays. It’s quite different than the enormous effort I made last year. And frankly all the years.

I’m not sad about it, although I admit it does sound sad. I love Christmas. Every time someone asks me, “Are you ready for Christmas?” with a bright smile, I smile back under my mask and say, “Yes I am.” I don’t say I am conserving my energy because I am exhausted, or it snuck up on me, or I’m busy covering my job and my boss’s job. I was doing all that last year too, and I still bought the gifts and trimmed the tree and cooked the dinner… even with a spinal cord injury!

I say I’m ready because we’re not doing it this year, so there’s nothing to get ready for. Our priorities have shifted: we are in full PCS mode. I have decided to end my assignment in Mexico, and in early January, we will pack out our house and return to Virginia.

To the Woods: Cloudcroft + Introduction to AIP Eating

A couple of weeks after we returned from our Iberostar vacation, I sat in my office tangled up in bureaucracy and my to-do list. Finding myself in need of solace and something to pull me into the future, I scrolled quickly through AirBnB options for the weekend. A bunch of cabins in some wooded mountains caught my eye. I remembered Cloudcroft, NM was less than 120 miles away. Doable for a short hiking trip, and startlingly, we’d not been there yet. My boss, born and raised in El Paso, had told me about the town of less than one thousand inhabitants the year before. Sitting at an elevation of almost 8,700 feet above sea level, nearly a mile higher up than Ciudad Juárez, there the golden desert landscape transformed into a green alpine coolness we’d never seen in the southwest. I texted V, “Want to get a cabin in the woods for an overnight this weekend? There are pine trees.” At first he didn’t believe me. I didn’t mention it might be cold. Then the affirmative answer came back pretty quickly.

I Left My Heart at the Iberostar Grand Paraíso

The morning V and I left with my dad and stepmom L for our flight to Cancun, we were up and packed well ahead of time. We even ate a good breakfast. They’d been visiting us in Juárez for a few days and we’d kept it low-key, hanging out around home and El Paso. But like most travel days, our control of things ended when we left the house. The shuttle I’d booked to Ciudad Juárez’s airport, where I’d never been and which required travel through a red zone, arrived a few minutes late and was a small sedan – not at all a “shuttle.” The trunk could only fit three carry-ons, so we had to ride three to the backseat and V in the front, all four of us somehow holding our large wheeled bags on our laps with V’s backpack slung behind my head in the back window. At first I was ticked off and embarrassed. I had explained when making the reservation we would be four adults, two traveling internationally, with luggage! Dad and L are in their 70s. I apologized to them but they are tough and good sports. After a few minutes we took selfies and started laughing about our stupid predicament. At least we all fit in the car, which to be honest I hadn’t been so sure was possible when it first rolled up.

Fourth Tour Bidding, Part I

As I mentioned in September, towards the end of this past summer, I decided to cut out the third year of my tour and bid for my onward assignment.

When I arrived here in July 2020, I agreed within a month to a third year extension. Most mid-level Foreign Service assignments are already three years in length. Some higher hardship posts like Ciudad Juárez are only two-year assignments, the length of entry-level tours, but grant mid-level FSOs who extend a 15% pay bonus called Service Need Differential (SND) for each of the three years. FSOs must serve all three years to receive the money; the SND cannot be prorated. If you receive some portion of SND money and don’t serve the full term, you have to pay it back. At this particular post, you can even extend to four years, and many do. It’s not a bad gig, so close to the U.S. and if you can stick out three years, the financial incentive is great in addition to getting off the death march of moving every other year.

The Land of Enchantment, Part II

The first week of October, we took a long-awaited trip back to New Mexico for the Albuquerque International Balloon Fiesta. Albuquerque is about 280 miles due north, or four and a half hours away, and it was a first visit for both of us. From the first time I saw a postcard of hot air balloons floating over Albuquerque stuck to my nana’s refrigerator as a child, I was mesmerized. Fortunately, after weather foiled several attempts to balloon in New Zealand in 2006, I got to experience hot air ballooning with V during our diplomatic assignment to Australia in 2018 – in Canberra where we lived and over New South Wales’ Hunter Valley as we celebrated our fifth wedding anniversary.

In Albuquerque we opted not to fly this time, due to cost and the inability to socially distance from other people in a hot air balloon basket. Instead we watched the 49th annual dawn Mass Ascension spectacle from the ground as more than 600 hot air balloons launched from a 78 acre field. This also gave me a better chance to see and photograph the balloons instead of being absorbed with our experience and logistics. While in town, we also visited the National Museum of Nuclear Science & History, stumbled into a fall festival at the ABQ BioPark Botanic Garden, and went hiking at two of the three Petroglyph National Monument sites – Boca Negra and Rinconada Canyon.

Nepenthe

Over the last couple of months as spring has turned into summer, I have found solace spending time outdoors. While I have deferred real hiking in well-known places, the dry heat and flat desert-like walks over the border in El Paso have provided me with a number of things I need: the mood-lifting and weight loss benefits of exercise, continued healing from spinal surgery, arthritis relief, fresh air, and safety and solitude away from others.

Suckerpunch

The last several weeks have been among the most difficult in my Foreign Service career. From my perspective, life has been worse overall these past two months than during the prior 14 months of the pandemic put together. This might be hard to understand and even a little hard to believe, given how many people – at least in the U.S. – seemingly feel their lives are finally returning to some sense of normalcy. But it isn’t hyperbole. As an immunocompromised person who has been living with autoimmune disease since my late 20s, and who is currently slipping into the public policy and social chasm between the vaccinated and the unvaccinated, I truly feel left behind and isolated during this stage of the pandemic. Although I continue to be employed, meet my weight loss goals, and heal from back surgery, the rest of my life has become a slow rolling nightmare I never anticipated. I’m surrounded by a society that feels ignorant and selfish at best and eugenicist at worst, and rocketing towards a future where COVID-19 is endemic and those of us with compromised immune function face never getting our normal lives back, as everyone unapologetically eats cake right in front of us that we once talked about eating together.

For Immunocompromised People, The Pandemic is Now + How You Can Be An Ally

The United States is opening back up after almost 16 months of the coronavirus pandemic. According to Google, as of today about 152 million (or 46%) of U.S. residents are fully vaccinated against COVID-19. I have seen other figures that say half the country is vaccinated, and a quarter does not intend to get the vaccine. But for nearly 10 million vaccinated American adults like me with immunocompromised or immunosuppressed conditions, early data is showing vaccine efficacy may provide low or even nonexistent protection against the deadly virus. Medical experts warn immunocompromised people should get vaccinated, but continue maintaining the same masking and social distancing protocols we have the past year. In other words, get vaccinated, but behave as if unvaccinated. For how long, no one can say yet.

For the immunocompromised population, the so-called end of the pandemic feels like a party we have not been invited to but cannot leave. As people unmask around us and celebrate their safety and return to normalcy, public policy – and apparently most everyone we know – has decided the rights of the chronically ill to also be safe and protected from the virus should be sublimated by the convenience and comfort of the healthy, able-bodied majority. Amidst soaring hopes that society will soon be totally back to normal and unreasonable expectations about what activities are safe and medically appropriate for the immunocompromised to participate in, is it any wonder immunocompromised people could use more allies right now?

Unmasked

My last post was a round-up of reader questions to the blog inbox, but in the last several weeks since I’ve written a ‘real’ update, so much has happened. The world’s eagerness to get back to life as we knew it pre-pandemic is progressing quickly. Although only about 41% of the U.S. population is fully vaccinated as of May 29, I’m seeing an awful lot of the lower halves of people’s faces.

Rest, Now

The week before last I went into the hospital in El Paso, TX for spinal fusion surgery. It seems like much longer ago. The operation was something I had wanted and pursued for months: finding a neurosurgeon, consulting on different treatment options, and even getting a second opinion. Had it not been for the pandemic I would have acted sooner, because the pain and left leg/foot numbness that started within a year of my 2018 back surgery was becoming unbearable.

By all accounts the procedure went well, although letting the fusion heal successfully over the coming weeks and months will be key. Although proximity and access to U.S. medical care has been a major plus for us at this post, the hospital “care” experience for me from start to finish was less than I expected and a rude re-introduction to many aspects of the U.S. healthcare system (especially after Australia!). Less than two weeks later, the whole thing already feels like a surreal dream.

Tumbleweeds

For the last several weeks, I have been filled with ideas for blog posts, but have been working so many hours that I have deferred them to a future, calmer time. In preparation for a long-awaited spinal fusion surgery this coming week, I have been trying hard to clear the decks at work and at home. I don’t know if I have been succeeding, but one thing has become increasingly clear: I would not have been able to put the recent amount of hours on the clock I have without crashing and burning, were it not for the protective bubble of pandemic-related health and safety protocols around me. For the first time in my adult life, I have now passed 13 consecutive months with zero viral illnesses.

Year in Review: 2020 Blog Stats and Recap

As longtime readers of this blog know, since I launched in April 2014 I have never missed a month. Sure, there were a couple of times where I posted on the last day of the month, but I have never gone a month without posting something. And I was not going to start 2021 by messing that up! I don’t know why it matters to me; it is not as if missing a month means I can never come back. People who know me would not be surprised by me adhering to this all-or-nothing mentality though. I guess it’s just the way I am. Lest you think I need rules to govern me entirely, I actually do still very much enjoy writing for this blog; it’s just that the last two months have passed in a blur of work and one crisis after another that have left me simultaneously exhilarated and wiped out, which are stories for another day. So here I am at the eleventh hour with a short recap of 2020 and blog stats for the year.

Ingratitude, and In Gratitude

I always know it has been too long between blog posts when too many half-developed ideas jumble together in my mind, clamoring to get out before they morph into something else with the passage of time. I try to think through my ideas, make them distinct, articulable, frame a coherent narrative from which I can draw conclusions. But sometimes it is not until I just release the words to the page, as it were, that the cross-currents of thoughts begin to flow in one direction and I understand what it is I want to say better than I could when I left it in my own mind. It is almost as if writing is my process of thinking; whether and to what extent I succeed in making a point is another matter.

This isn’t everything, but it’s all true.

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